quick update

The sun may have flaked out but the amazing people of Manitoba did not. I am completely overwhelmed and humbled by the amount of support that we received at the Laps for Life last Saturday. There were over 500 entries! People of all ages (and a few canine companions) walked or ran in support of Mackenzie and Tatyanna and ultimately Batten Disease. The day was made even better by the fact that we were able to be there as a family….all of us….something that I was not entirely sure would be possible.

Unfortunately, our excitement for the day was far from over and Saturday evening found Tatyanna back in the PICU at the Children’s Hospital due to more seizures.  On the upside, since we were already in the city we were able to avoid being transferred there from our local hospital.  The staff at Children’s is becoming familiar with Tatyanna and she was very well looked after while we were there.   We are home now but it will take a day or two for us to find our groove again…photos of the Laps for Life…they are coming!


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