Links

More Information

Batten Disease Support and Research Association - the "go to" site for info

National Institute of Neurological Disorders

Gene Reviews (detailed overview)

Research and Development

Beyond Batten Disease Foundation

Tiantan Puhua Neurological Center

Stem Cells Inc

Wu Stem Cells Medical Centre

Hide and Seek Foundation - Lysosomal Storage Disorders

Other Stories

Mackenzie's Hope ( also from Manitoba)

Taylor's Tale

Blake's Purpose

Jasper Against Batten

Mary Paton's Miracle

Noah's Hope

Our Promise to Nicholas

Hope 4 Bridget

Hailey and Carter's Dream

Zivot - translator will appear on sidebar once site loads

Chad's Hope

Nathan's Battle

A fight for Nicolas

Bee for Battens

Team Tilda

Olivia's Miracle

Holding on to Kate

Elijah's Victory

Mabel's Able

If you have a website and would like to be added to this list, please let us know!

tatyannashope@live.ca